{"id":2967,"date":"2022-05-11T15:45:59","date_gmt":"2022-05-11T13:45:59","guid":{"rendered":"https:\/\/dev.ircpss.com\/temoignages-de-patients\/"},"modified":"2025-11-18T09:54:08","modified_gmt":"2025-11-18T08:54:08","slug":"temoignages-de-patients","status":"publish","type":"page","link":"https:\/\/dev.ircpss.com\/fr\/temoignages-de-patients\/","title":{"rendered":"T\u00e9moignages de patients"},"content":{"rendered":"

[vc_row full_width=\u00a0\u00bbstretch_row\u00a0\u00bb css=\u00a0\u00bb.vc_custom_1658395068807{background-position: center !important;background-repeat: no-repeat !important;background-size: cover !important;}\u00a0\u00bb el_class=\u00a0\u00bbheader-bg\u00a0\u00bb][vc_column offset=\u00a0\u00bbvc_hidden-xs\u00a0\u00bb][vc_empty_space height=\u00a0\u00bb100px\u00a0\u00bb][\/vc_column][\/vc_row][vc_row full_width=\u00a0\u00bbstretch_row\u00a0\u00bb css=\u00a0\u00bb.vc_custom_1658395140791{background-position: center !important;background-repeat: no-repeat !important;background-size: cover !important;}\u00a0\u00bb el_class=\u00a0\u00bbheader-bg\u00a0\u00bb][vc_column width=\u00a0\u00bb1\/12″][\/vc_column][vc_column width=\u00a0\u00bb10\/12″][vc_column_text]<\/p>\n

T\u00e9moignages de patients<\/span><\/h1>\n

[\/vc_column_text][\/vc_column][vc_column width=\u00a0\u00bb1\/12″][\/vc_column][\/vc_row][vc_row gap=\u00a0\u00bb25″ equal_height=\u00a0\u00bbyes\u00a0\u00bb content_placement=\u00a0\u00bbmiddle\u00a0\u00bb css=\u00a0\u00bb.vc_custom_1734426368264{margin-top: 50px !important;margin-bottom: 25px !important;border-radius: 20px !important;}\u00a0\u00bb][vc_column width=\u00a0\u00bb1\/2″ css=\u00a0\u00bb.vc_custom_1734426405295{background-color: #E1FDFF !important;border-radius: 15px !important;}\u00a0\u00bb el_class=\u00a0\u00bbombre-inner pink-card\u00a0\u00bb][vc_column_text css=\u00a0\u00bb.vc_custom_1736083704683{margin-bottom: 15px !important;padding-right: 10px !important;padding-left: 10px !important;}\u00a0\u00bb]<\/p>\n

Les shunts portosyst\u00e9miques cong\u00e9nitaux (CPSS), une malformation rare qui peut \u00eatre trait\u00e9e<\/span><\/h2>\n

Les shunts porto-syst\u00e9miques cong\u00e9nitaux (CPSS) sont des malformations rares qui emp\u00eachent le sang provenant des intestins de passer par le foie. Cette malformation rare peut avoir un impact significatif sur la sant\u00e9, mais il existe des solutions pour la traiter et pr\u00e9venir les sympt\u00f4mes graves. Dans cette vid\u00e9o, d\u00e9couvrez plus d’informations sur les CPSS, leurs sympt\u00f4mes et comment les traiter.<\/strong> Vous trouverez \u00e9galement un t\u00e9moignage \u00e9mouvant d’une famille touch\u00e9e par cette maladie rare.<\/span>[\/vc_column_text][\/vc_column][vc_column width=\u00a0\u00bb1\/2″][vc_video link=\u00a0\u00bbhttps:\/\/youtu.be\/k_-q_KsEZX0?si=PJW69s1jhZK_bo0c\u00a0\u00bb align=\u00a0\u00bbcenter\u00a0\u00bb css=\u00a0\u00bb.vc_custom_1734379535177{margin-bottom: 0px !important;}\u00a0\u00bb][\/vc_column][\/vc_row][vc_row content_placement=\u00a0\u00bbmiddle\u00a0\u00bb][vc_column]

<\/div>
  • \"\"<\/div>
    <\/i><\/span>
    Ma fille a subi une chirurgie cardiaque et quelques complications, mais apr\u00e8s deux ans et demi, nous n'arrivions pas \u00e0 nous en sortir, elle n'\u00e9tait pas capable de se sevrer de l'oxyg\u00e8ne et nous ne comprenions pas la cause. En fait, nous faisions des consultations neurologiques, cardiologiques et \u00e0 un moment donn\u00e9, nous avons m\u00eame envisag\u00e9 la double transplantation c\u0153ur-poumons. C'\u00e9tait tr\u00e8s compliqu\u00e9. <\/blockquote><\/div><\/div>
    <\/span><\/span><\/span><\/div>
    Young patient's mother<\/h5>Before the discovery<\/span><\/div><\/li>
  • \"\"<\/div>
    <\/i><\/span>
    Avant, je ne me souvenais de rien. J'\u00e9tais toujours fatigu\u00e9e, somnolente, avec \u00e9galement de petits probl\u00e8mes de compr\u00e9hension. Mon cerveau \u00e9tait toujours embrum\u00e9, je n'\u00e9tais jamais \u00e0 l'heure, je ne pouvais absolument rien retenir. Lorsque j'ai subi une intervention chirurgicale, les choses se sont am\u00e9lior\u00e9es. Je me souviens maintenant de choses comme le code de ma carte, et je comprends un peu mieux la valeur de l'argent. Je ne suis plus sous tutelle renforc\u00e9e. Aujourd'hui, je travaille dans une cuisine centrale. Je vais faire davantage de choses et c'est mieux ainsi.<\/blockquote><\/div><\/div>
    <\/span><\/span><\/span><\/div>
    Adult patient<\/h5>About the changes<\/span><\/div><\/li>
  • \"\"<\/div>
    <\/i><\/span>
    Nous avons r\u00e9alis\u00e9, presque dix jours apr\u00e8s l'op\u00e9ration, que nous la voyions moins fatigu\u00e9e, moins essouffl\u00e9e et m\u00eame si le taux d'oxyg\u00e9nation \u00e9tait bon, le taux de saturation n'\u00e9tait pas n\u00e9cessairement ad\u00e9quat mais nous pouvions voir que c'\u00e9tait mieux, c'\u00e9tait \u00e9vident. Et par la suite, progressivement bien s\u00fbr, la saturation s'est am\u00e9lior\u00e9e. Nous avons r\u00e9ussi \u00e0 diminuer l'oxyg\u00e8ne et apr\u00e8s, le sevrage a pris six mois. En fait, tout s'est am\u00e9lior\u00e9 graduellement et nous avons pu reprendre une vie normale apr\u00e8s un an. <\/blockquote><\/div><\/div>
    <\/span><\/span><\/span><\/div>
    Young patient's mother<\/h5>About after the treatment<\/span><\/div><\/li>
  • \"\"<\/div>
    <\/i><\/span>
    Notre fille a \u00e9t\u00e9 hospitalis\u00e9e pendant une semaine car elle avait une saturation tr\u00e8s faible. Nous avons atteint 55 % de saturation. Les m\u00e9decins nous disaient \u00ab Nous nous consultons, nous avons des r\u00e9unions entre cardiologues et pneumologues pour savoir ce que nous pouvons faire \u00bb, jusqu'\u00e0 un moment donn\u00e9 o\u00f9 le chef du service de pneumologie nous a dit \u00ab Avons-nous \u00e9t\u00e9 voir le foie ? \u00bb et la r\u00e9ponse \u00e9tait non. Nous avons fait une premi\u00e8re investigation et c'est ainsi que tout s'est mis en place. Nous avons d\u00e9couvert la fistule portosyst\u00e9mique. <\/blockquote><\/div><\/div>
    <\/span><\/span><\/span><\/div>
    Young patient's mother<\/h5>About the discovery<\/span><\/div><\/li><\/ul><\/div>\n[\/vc_column][\/vc_row][vc_row][vc_column offset=\u00a0\u00bbvc_hidden-xs\u00a0\u00bb][vc_empty_space height=\u00a0\u00bb60px\u00a0\u00bb][\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"

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